UDSv4 Resources and Tools
The Electronic Data Capture and Submission Documentation site contains UDSv4 resources and documentation for the following:
General Resources
- UDSv4 Forms – Downloadable PDFs of individual forms or entire packets
- UDSv4 Coding Guidebook
- UDSv4 Onboarding Checklist - Step-by-step instructions and links to the resources ADRCs need to get started
Technical Resources
- REDCap files – Download individual REDCap instrument zip files or an XML file containing the entire REDCap UDSv4 project
- UDSv3 to UDSv4 Crosswalks - Data harmonization instructions between UDSv3 and UDSv4 for each form as well as JSON versions of the crosswalks
- Technical documentation and REDCap SOPs - Instructions and best practices for calculated fields, custom reporting, data access groups, REDCap data quality rules, data dictionaries, customization of user roles, how to use crosswalks, JSON files, XML, and more
- Error Checking Process Review - The process for running error checks and receiving an error report after submission; includes instructions on using the NACC Form Validator library to implement error checks locally so you can check data before submitting
- NACC Data Platform Sandbox – A practice environment for ADRCs to test data submissions and API submissions without impacting finalized or “real” data
NACC Data Platform Access
NACC Data Platform and ADRC Portal permissions are set by Center Administrators in the NACC Directory member profiles. If you don’t currently have access, please contact your Center Administrator and ask them to add you to the NACC Directory and/or set up your permissions. You will subsequently receive an email with instructions for setting up your account.
NACC GitHub Library
Go to the GitHub Library to access and download software, error check code, demonstration code, modules, various Flywheel resources, etc.
Governance
If you need assistance with research governance, please submit a support request and include "Governance" in the title. This can include questions about IRB approvals, exemplar IRB language from other ADRCs, ADRC-NACC DTUA inquiries, or changes to informed consent forms.
Clinical Tools and Resources
Review UDSv4 Forms and Coding Guidebook - download PDF and REDCap versions of the UDSv4 forms and guidance on how to administer them
Knight ADRC Public CDR® Training - Form B4: CDR® (links to Washington University in St. Louis)
NPI-Q Interviewer Certification Module - Form B5: NPI-Q Interviewer Certification Module
Live Trainings / Webinars
December 2024 Tackling DSM-5-TR in UDSv4: Pointers and Cases
This webinar addresses the use of DSM-5-TR criteria as part of UDSv4. Specifically, speakers discuss the context of using the criteria, how to access them via Psychiatry Online, how to apply them to individual cases, and how to complete the relevant UDSv4 forms (A5/D2 and D1a).
November 2024 Form B8 Neurological Examination Findings training video
This training video created by the University of Kentucky Sanders-Brown Center on Aging covers the full neurological examination.
February 2024 UDSv4 Cognitive Task Force Webinar
Presenter Dr. Kostas Lyketsos uses a case-based approach to ratings of neuropsychiatric symptoms and mild behavioral impairment on Form D1a and related forms.
Operationalizing “Impaired, not MCI” in UDSv4
This webinar addresses operationalizing “Impaired, not MCI” vs MCI in the UDSv4 including an overview of the item on UDSv4 Form D1a.
Our experts present an overview of the new modules, features, forms, and changes in the UDSv4. For more info, view our Q&A for answers regarding the UDSv4 forms and data collection.
Digital Voice Resources
UDSv4 Digital Voice Webpage - Provides a central hub for ADRCs interested in learning more about digital voice data collection as part of UDSv4. NACC and the CTF Technology Workgroup have collaborated on several resources to aid ADRCs in collecting digital voice data. At this time, digital voice capture is encouraged but not required.
Resources available on the UDSv4 Digital Voice webpage include:
Digital Voice Start-up Checklist - A guide for ADRCs and other researchers to get started collecting digital voice audio recordings as part of the UDSv4 cognitive exam for research analysis.
IRB Protocol and Informed Consent Language - Provides ADRCs with guidelines, examples of IRB protocol and informed consent language, and helpful suggestions to aid centers in obtaining regulatory compliance for the collection and storage of digital voice data as part of UDSv4.
Digital Voice Recording Manual - Provides in-depth instructions and best practices for collecting, storing, and processing digital voice data at your ADRC.
June 2024 Digital Voice Workshop video
This workshop provided guidance on the consent process, recording procedures, and data storage for digital voice data. Leaders in the digital voice field presented research findings emphasizing the scientific importance and potential of digital voice data.
Data Collection and Submission Resources
UDSv4 Data Collection Options
Use NACC’s UDSv4 REDCap project XML file or Data Dictionary
Use this XML file to quickly create a UDSv4 project for collecting UDSv4 on your local REDCap instance. Alternatively, you can use the Data Dictionary to import individual UDSv4 instruments into an existing project on your local REDCap instance.
- Learn how to set up your local REDCap
- Watch demo video on how to upload XML
- Download UDSv4 REDCap instruments and data dictionaries
Collect data using your own local EDC
ADRCs may use their own local EDC for data collection. Go to the Electronic Data Capture and Submission Documentation site to download the REDCap Data Dictionary, Coding Guidebooks, Data Crosswalks, and a Data Element Dictionary for building or modifying an EDC to collect UDSv4 data.
Collect data using PDFs of UDSv4 forms
PDF forms are available for ADRCs to download and print for initial UDSv4 data collection. In addition to English forms, NACC will also provide UDSv4 forms in Spanish, Mandarin (Simplified and Traditional), and Cantonese (Simplified and Traditional).
Enter UDSv4 forms data directly into the NACC-hosted REDCap instance
Each ADRC will have access to a NACC-hosted UDSv4 REDCap project, which is available through the ADRC Portal. For further assistance, watch a demo video or read the instructions.
UDSv4 Submission Options via the NACC ADRC Portal
Programmatic Upload
Using an API, upload to the NACC Data Platform using the Flywheel CLI tool or a Flywheel provided SDK.
CSV Batch file submission
Submit a CSV containing batch UDSv4 form data to NACC through the ADRC portal.
Direct Entry
Use NACC’s hosted REDCap instance to enter UDSv4 data directly into REDCap forms and submit to the NACC Data Platform.
Additional UDSv4 Data Collection and Submission Training and Resources
May 2024 Streamlining Data Collection with Skip Logic
Branching logic, or skip logic, streamlines the data entry process by only displaying questions that are relevant. This improves data quality.
April 2024 Submit UDSv4 Data via the ADRC Portal
Demonstration video of the ADRC Portal data submission interface.
June 2024 Data Submission Training
Webinar that highlights some of the key features in the modernized UDSv4 data submission system.
Get Support
ADRC Program Community Forum
Join the Program’s private, invitation-only moderated forum to ask questions, get answers, and collaborate with NACC colleagues
Office Hours
Join open Zoom meetings with NACC's Technology, REDCap, and Research Teams to get answers to your specific questions
UDSv4 FAQ
Check out this continuously updated list of the most common questions and answers on the Forum