Join forces with the leading data hub for Alzheimer's Disease research. Together, we can accelerate discoveries and advance treatments for millions of patients worldwide.
Why Partner with NACC?
The National Alzheimer's Coordinating Center (NACC) serves as the centralized data repository and collaboration hub for the National Institute of Aging's Alzheimer's Disease Research Centers (ADRC) Program. Over the past 24+ years, NACC has partnered with over 42 current and former ADRCs across the U.S. to build one of the world's largest and most comprehensive datasets on Alzheimer's disease and related dementias (AD/ADRD). The NACC Data Platform houses standardized multimodal data on more than 50,000 participants, ranging from cognitively normal individuals to those with mild cognitive impairment or dementia symptoms, with over 17,000 participants actively followed.
Key Statistics:
42
Current and Former ADRC Partners
50,000+
Participants in NACC Data Platform
40,000+
Participants in Uniform Data Set
17,000+
Participants Actively Followed
6,200+
Participants with SCAN Neuroimaging Data
24+
Years of Data Collection
Ready to Make an Impact?
Whether you're conducting groundbreaking research, developing innovative tools, or building the next generation of Alzheimer's treatments, NACC offers comprehensive data, analytical resources, and a research community to amplify your work.
Collaboration Opportunities
1. Research Partnerships
Access our comprehensive datasets and collaborate with top researchers across the ADRC network to advance your scientific investigations.
Recent Examples:
- CLARiTI longitudinal study infrastructure
- Real world data initiatives
- Multi-center genetic analysis projects
- Cross-platform genomic studies utilizing NACC+NCRAD+NIAGADS data
- Biomarker validation studies with integrated biological samples
2. Data Platform Integration
Integrate your tools and platforms with our cutting-edge data infrastructure to enhance research capabilities across the network.
Current Platforms:
- NACC Data Platform with SCAN Dashboards
- Standardized Centralized Alzheimer's & Related Dementias Neuroimaging (SCAN) initiative
- REDCap integration for UDS v4
- Integrated access to NCRAD biological samples
- NIAGADS genetic data portal connectivity
- ADGC genomic data coordination
3. Educational Programs
Partner with us on mentorship, training, and educational initiatives that support the next generation of Alzheimer's researchers.
Programs Include:
- New Investigator Award Program Mentorship (94% ADRC participation)
- REC Scholar support and poster sessions
- Mock study sections and grantsmanship training
4. Event Collaboration
Co-host workshops, symposiums, and meetings that bring together researchers, clinicians, and stakeholders in the ADRD community.
Event Types:
- Semi-annual ADRC meetings (hybrid format)
- Specialized workshops and training sessions
- Technology demonstrations and interactive booths
5. Technology Development
Collaborate on developing and implementing new technologies that enhance data collection, analysis, and sharing capabilities.
Focus Areas:
- Digital biomarker collection tools
- AI-enabled data analysis platforms
- Participant recruitment and engagement systems
- SCAN neuroimaging standardization and harmonization
- Multi-modal data integration platforms
6. Data Sharing Initiatives
Work with us to leverage NACC's established data sharing mechanisms and expand access to standardized ADRD research data for the global research community.
Opportunities:
- Quick-Access data file requests for rapid research initiation
- Custom dataset development tailored to specific research questions
- Training and support for NACC data utilization
- Collaborative data analysis using NACC's multi-modal datasets
NACC's Comprehensive Data Ecosystem
Access a Rich Network of Data Resources
NACC serves as the central hub in a powerful ecosystem of Alzheimer's research resources. When you collaborate with NACC, you gain access not just to our extensive longitudinal clinical data, but to a comprehensive network of complementary data sources:
NACC + NCRAD + NIAGADS + ADGC = A Rich Data Source
Longitudinal Clinical Data
- 40,000 participants in Uniform Data Set (2005-present)
- Neuropathologic data on subset of participants
- Minimum Data Set (MDS) with abstracted data from 1984-2005
- Standardized clinical and neuropathological research data
- SCAN neuroimaging data: 6,244 participants with standardized PET/MRI scans
Biological Samples
- NIA-designated biorepository for dementia-related studies
- DNA, RNA, plasma, serum, CSF, brain tissue samples
- Lymphoblastoid cell lines (LCLs), peripheral blood mononuclear cells (PBMCs)
- Induced pluripotent stem cells (iPSCs), fibroblasts, and feces
Genetic Data
- National genetics data repository for qualified investigators
- Genomic data from NIA-funded genetic studies
- Deep phenotype data and biomarkers
- CHIP-Seq, RNA-Seq, and expression data
- Genome-wide association studies
ADRC Genetic Data
- Genetic variants associated with AD risk
- Exclusive access for ADRC-affiliated researchers
- Comprehensive genotypic and genomic datasets
What Happens Next?
Our team will review your request and get back to you within 5 business days. We'll schedule a preliminary discussion to explore how we can best support your collaboration goals.