ADRC Groups
Alzheimer’s Disease Research Centers Groups
The National Alzheimer’s Coordinating Center (NACC) collaborates with dedicated workgroups to advance Alzheimer’s disease research and improve data collection methodologies. These workgroups, composed of experts from the Alzheimer’s Disease Research Centers (ADRCs), focus on specialized domains to refine research practices and establish consistent standards. By fostering collaboration and integrating the latest scientific advancements, these workgroups are essential to NACC’s mission of supporting high-quality, standardized data collection across the Alzheimer’s research community.
By focusing on specialized areas, these workgroups ensure that NACC and the ADRC network remain at the forefront of Alzheimer’s disease research, leveraging expertise and innovation to advance the field.
By focusing on specialized areas, these workgroups ensure that NACC and the ADRC network remain at the forefront of Alzheimer’s disease research, leveraging expertise and innovation to advance the field.
Clinical Task Force (CTF) and Specialized Workgroups
Purpose: Guide the development and ongoing refinement of the Uniform Data Set (UDS), ensuring it evolves to incorporate the latest scientific and clinical knowledge.
Responsibilities: The CTF partners with NACC to establish strategic objectives, set priorities, and oversee the delivery of key initiatives. Within this framework, specialized workgroups focus on targeted areas such as electronic data capture (EDC) workflows and the implementation of UDS version 4 (UDSv4). These workgroups address technical and operational challenges to ensure that data collection remains efficient, reliable, and aligned with research priorities.
Electronic Data Capture (EDC) Workgroup
Purpose: Drive the transition from paper-based data collection to modern electronic systems across the ADRCs.
Responsibilities: This workgroup develops streamlined EDC workflows, provides comprehensive training and technical support for ADRC staff, and ensures data accuracy and security during the transition. By modernizing data capture methods, the EDC Workgroup enhances efficiency, reduces errors, and positions the ADRC network for long-term success in managing complex data.
Biomarker Workgroups
Purpose: Develop standardized guidelines for the collection, processing, and analysis of fluid biomarkers across the ADRC network to ensure data consistency and reliability.
Responsibilities: These workgroups establish protocols that harmonize biomarker data collection, enabling cross-center collaboration and improving the comparability of findings. Their efforts support critical research into the biological mechanisms of Alzheimer’s disease and help accelerate the discovery of new diagnostic tools and therapeutic targets.
American Indian and Alaska Native AD/ADRD Data Sovereignty Advisory Group
Purpose: Advocate for the respectful collection, management, and use of data from Indigenous populations participating in Alzheimer’s and related dementias research.
Responsibilities: This advisory group works to ensure that data sovereignty principles are upheld, including the protection of cultural and community interests. It advises on the development of culturally sensitive research protocols, supports the meaningful inclusion of Indigenous perspectives, and fosters partnerships with Indigenous communities to promote trust and collaboration.
ADRC Groups
Clinical Task Force (CTF) and Specialized Workgroups
Purpose: Guide the development and ongoing refinement of the Uniform Data Set (UDS), ensuring it evolves to incorporate the latest scientific and clinical knowledge.
Responsibilities: The CTF partners with NACC to establish strategic objectives, set priorities, and oversee the delivery of key initiatives. Within this framework, specialized workgroups focus on targeted areas such as electronic data capture (EDC) workflows and the implementation of UDS version 4 (UDSv4). These workgroups address technical and operational challenges to ensure that data collection remains efficient, reliable, and aligned with research priorities.
Electronic Data Capture (EDC) Workgroup
Purpose: Drive the transition from paper-based data collection to modern electronic systems across the ADRCs.
Responsibilities: This workgroup develops streamlined EDC workflows, provides comprehensive training and technical support for ADRC staff, and ensures data accuracy and security during the transition. By modernizing data capture methods, the EDC Workgroup enhances efficiency, reduces errors, and positions the ADRC network for long-term success in managing complex data.
Biomarker Workgroups
Purpose: Develop standardized guidelines for the collection, processing, and analysis of fluid biomarkers across the ADRC network to ensure data consistency and reliability.
Responsibilities: These workgroups establish protocols that harmonize biomarker data collection, enabling cross-center collaboration and improving the comparability of findings. Their efforts support critical research into the biological mechanisms of Alzheimer’s disease and help accelerate the discovery of new diagnostic tools and therapeutic targets.
American Indian and Alaska Native AD/ADRD Data Sovereignty Advisory Group
Purpose: Advocate for the respectful collection, management, and use of data from Indigenous populations participating in Alzheimer’s and related dementias research.
Responsibilities: This advisory group works to ensure that data sovereignty principles are upheld, including the protection of cultural and community interests. It advises on the development of culturally sensitive research protocols, supports the meaningful inclusion of Indigenous perspectives, and fosters partnerships with Indigenous communities to promote trust and collaboration.